300 Longwood Avenue
Boston, MA 02115
(617) 355-6000
Clinical Services (Celiac Disease Program and Support Group):
Celiac Disease Support Group
Welcome to Children's Hospital Boston Celiac Support Group
Now what? We can help. With more than 350 member families, the Celiac Support Group welcomes you to join us. Since 1992 we have provided a helping hand for families learning to manage the gluten-free lifestyle. Our members are primarily parents of children with celiac disease. We offer newly diagnosed families a wealth of knowledge and guidelines for raising celiac children.
As a new member, our outreach committee will contact you and give your family support in the form of diet education and a welcome basket filled with gluten- free foods.
Other membership benefits include:
Networking with other parents
A quarterly newsletter covering medical updates, news of the celiac community, gluten-free recipes, educational articles and gluten-free commercial product lists
Fall Meeting: Scavenger Hunt and Kids? Panel Date: Sunday, October 18, 2009 Time: 1:30 - 4PM Location: Flashner Conference Room Children?s Hospital, 9 Hope Avenue Waltham, MA
Come to an interactive discussion where our panel of children from elementary, middle, and high school will answer questions from their points of view and experiences. Vendor shopping and product sampling will also be available.
If you are interested in helping with the planning of this event, or volunteering the day of the event, please email our volunteer coordinator, Linda Albert: LINDAG320@AOL.COM We welcome any time that you can give!
More details will be mailed in September, but save the date now!
New Resources
DVD
The Celiac Support Group in partnership with Children's Hospital Boston recently produced an educational DVD entitled "Raising Your Celiac Child, Guidelines for a Gluten-Free Life." More than 2 hours in length, this comprehensive, educational tool provides the viewer with everything they need to know about living a gluten- free lifestyle. The DVD is designed with 12 interactive modules covering a full spectrum of lifestyle issues for celiac disease management
Celiac Support Group School Packet
This packet will provide you with the information and tools to help make you and your child's school experience happy and safe.
Now what? We can help. With more than 350 member families, the Celiac Support Group welcomes you to join us. Since 1992 we have provided a helping hand for families learning to manage the gluten-free lifestyle. Our members are primarily parents of children with celiac disease. We offer newly diagnosed families a wealth of knowledge and guidelines for raising celiac children.
As a new member, our outreach committee will contact you and give your family support in the form of diet education and a welcome basket filled with gluten- free foods.
DVD