Advanced Fetal Care Center (AFCC)
The International Federation for Spina Bifida and Hydrocephalus (IF)
IF's membership consists of 38 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Its mission is to improve the quality of life of people with Spina Bifida and Hydrocephalus throughout the world and to decrease the prevalence of Spina Bifida and Hydrocephalus by primary prevention.
Christopher A Walsh Laboratory
An organization that is researching the development and function of the cerebral cortex and genes involved, as well as, educating on genetics and DNA.
Elliana Grace Foundation
Established by Elliana's parents, this site is for families facing the diagnosis of a Congenital Heart Defect. Dan and Brita "also want to help hospitals like Boston Children's Hospital continue to progress in their quest for new and progressive medical treatments for children with Congenital Heart Defects."
Fetal Hope Foundation
The Fetal Hope Foundation's mission is to provide support, provide information, fund research, increase awareness and be an outlet for leading medical information pertaining to fetal distresses and syndromes.
Foundation for Faces of Children
The FFC is a non-profit, volunteer-led organization supporting and offering educational resources to families and children with craniofacial conditions.
Massachuesetts Down Syndrome Congress
Established in 1983, this non-profit, all-volunteer organization's mission is to offer information, advocacy and networking to people and families with Down syndrome.
Tef Vater International Support Group
Established in 1990 by a family dealing with a newborn diagnosed with Esophageal Artesia, Tef Vater is dedicated to offering support and insight on this fetal anomaly.
GEEPS
This non-profit organization is run by families and friends of affected children to support families of children with Gastroschisis.
The Twin to Twin Transfusion Syndrome Foundation
The TTTS foundation provides immediate information about Twin to Twin Transfusion Syndrome including education, insight and support.
The Triplet Connection
Founded in 1983, this international organization is "network of caring and sharing for mutiple birth families." This site offers comprehensive information and reading material to provide insight for families expecting triplets or more.
The National Share Office
A nationwide, non-proft organization that is dedicated to serving those influenced by the loss of a baby through early pregnancy loss, stillbirth or during the first few months of life.
The Compassionate Friends
A nationwide, non-profit organization that is dedicated to assisting families toward a positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
Center for Loss in Multiple Birth (CLIMB)
An international network of parents that offers educational materials and support systems to aid in the loss of one or more children during a multiple pregnancy.
UNITE, Inc
A non-profit organization that is dedicated to providing grief support and education following the loss of a baby, including miscarriage, ectopic pregnancy, stillbirth and infant death.
CHERUBS
Founded in 1995, by a parent with a child born with Congenital Diaphragmatic Hernia, this soley volunteer, non-profit organization offers support to those effected by a child born with CDH.
Spina Bifida Association (SBA)
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
American Cleft Palate-Craniofacial Association
The mission of CPF is to enhance the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects.
Massachusetts Down Syndrome Congress (MDSC)
The mission of the MDSC is to ensure individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with Down syndrome and their families, educators, health care professionals, and the community-at-large.
Limb Differences
Our goal is to provide a comprehensive resource to the families and friends of children with limb differences.
Ponseti International
Our mission is to improve the treatment of children born with clubfoot through education, research, and improved access to care.
The Devon Nicole House Foundation
The Devon Nicole House is a non-profit 501(c)3 foundation dedicated to providing a home-away-from-home for families that have children receiving care at Boston Children's Hospital. We support The Devon Nicole House at Boston Children's Hospital and look to provide additional help to families in need.
Little Hearts, Inc.
Little Hearts, Inc. is a national organization providing support, education, resources, networking, and hope to families affected by congenital heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect.
