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Sickle Cell Disease Program

 Sickle Cell Disease Program
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 Blood Disorders
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Flower Long-Term Prognosis
Over the past 30 years, the life expectancy for individuals with sickle cell disease has increased, with many individuals now living into their mid-40s and beyond. Advances in preventative care and new medications have reduced the life-threatening complications of sickle cell disease. However, it remains a severe, chronic and sometimes fatal disease.

Several factors may predict the long-term survival of a child with this disease including the following:

  • type of disorder (whether a child has HbSS, HbSC, or other sickle variant)
  • frequency and type of complications
  • compliance with preventative regimens
Children's Hospital Boston's Sickle Cell Program oversees care from infancy to young adulthood. Once patients reach adulthood, Children's assists in transitioning them into a complementary adult program at Brigham & Women's Hospital, which is also located in the Longwood Medical Area.
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Related Links:

Brigham and Women's Hospital Community Sickle Cell Support Group

Management of Sickle Cell Disease

Camps and Young Adult Programs

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