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Researchers at Children's Hospital Boston conduct clinical and laboratory research to increase and enhance knowledge of sickle cell disorders and their treatment. Keeping abreast of current research, its application to clinical care, and advising families and referring physicians about available clinical trials are high priorities as well.
Children's is a clinical core for the Boston Comprehensive Sickle Cell Center, one of 10 National Institute of Health-funded centers in the United States. It is also a member of the New England Pediatric Sickle Cell Consortium (NEPSCC), and recently led a project aimed at improving newborn screen interpretation by primary care pediatricians, reinforcing the link between newborn screening diagnosis, hematology assessment and genetic counseling.
Through these affiliations and independent projects, Children's offer clinical trials researching the efficacy of new medications and therapies to treat sickle cell disease. Some current clinical research initiatives include:
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