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For more information about hemophilia, visit the sites below:
National Hemophilia Foundation
www.hemophilia.org
The National Hemophilia Foundation (NHF). General information as well as a wonderful resource for free literature (HANDI) on blood clotting disorders. 1-800-424-2634 or 212-328-2634.
Project Red Flag
www.projectredflag.org
Project Red Flag, the National Hemophilia Foundation?s public awareness campaign to help women recognize the symptoms of bleeding disorders. The website is a partnership between the CDC and NHF.
The New England Hemophilia Association
www.newenglandhemophilia.org
The New England Hemophilia Association (NEHA). The local chapter of NHF. NEHA?s focus is education and advocacy. Also send out a very informative newsletter.
781-326-7645
LA Kelley Communications
www.kelleycom.com
LA Kelley Communications is a comprehensive resource for educational resources, scholarship programs and a parent empowerment newsletter (PEN). 1-800-249-7977
The Hemophilia Federation of America
www.hemophiliafed.org
The Hemophilia Federation of America is a national non-profit organization that assists and advocates for the blood clotting disorders community. The newsletter, Dateline Federation is published four times a year. 1-800-230-9797.
The World Federation of Hemophilia
www.wfh.org
The World Federation of Hemophilia. An international organization offers a listing of hemophilia centers throughout the world.
Bruiseybee.com
www.bruiseybee.com
First clothing line dedicated, designed and tested to alleviate and help prevent bleeding-with padding on the shins, knees and buttocks. 707-823-1482
Medicalert.org
www.medicalert.org
A website to order medic alert bracelets or necklaces 1-800-432-5378.
Patient Services Incorporated
www.uneedpsi.org
Patient Services Incorporated (PSI) is a non-profit charitable organization that offers a "safety net" for people with hemophilia by subsidizing cost of insurance premiums and other services. 1-800-366-7741.
The Center for Disease Control and Prevention
www.cdc.gov
The Center for Disease Control and Prevention serves as a national focus for developing and applying disease prevention and control, environmental health and health promotion and health education to improve the health of the people of the United States.
The American Thrombosis and Hemostasis Network
www.athn.org
The American Thrombosis and Hemostasis Network is a non-profit organization founded to advance and improve the care of individuals affected by bleeding and thrombotic disorders. 847-607-9479.
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