Center for Inflammatory Bowel Disease Treatment and Research

Reference Book List

• Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving, by the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. Editors-in-chief: Maria Oliva-Hempker, David Ziring, MD, and Athos Bousvaros, MD. Johns Hopkins University Press, (2010). 163 p. Recommended by the physicians at Children’s Hospital, Boston’s IBD Center.
• Managing your Child’s Crohn’s Disease or Ulcerative Colitis, by K. Benkov and H. Winter, MasterMedia Limited, (1996). 163 p. Recommended by the physicians at Children’s Hospital, Boston’s IBD Center.
• Straight from the gut: living with crohn’s disease and ulcerative colitis, by C. Kalibijan, O’Reilly & Associates, Inc. (2003). Written by a patient with IBD, this book is highly recommended by the physicians at Children's Hospital, Boston’s IBD Center.
• Alive and Kicking by Rolf Benirschke and Mike Yorkey, The Firefly Press, (1996): An inspirational personal story of an NFL player who overcame the challenges of ulcerative colitis and returned to professional football for seven more seasons.
• Colitis: The Experience of Illness by Michael P. Kelly, Routledge, (1992): Written by a person with ulcerative colitis, this book describes the disease and its challenges from a patient’s perspective.
• A Delicate Balance: Living Successfully with Chronic Illness by Susan Wells, (1998): This book is a must read for people with a chronic illness. It provides insights about living with a chronic illness through interviews with patients, families, and care providers. It includes information about all aspects of living with a chronic illness, from diagnosis to necessary workplace accommodations.
• Going Abroad: The Bathroom Survival Guide, A Comprehensive Guide to Answering the Call of Nature Anywhere in the World by Eva Newman, Marlor Press, (1997): This is a comprehensive guide to toilets all around the world, from bidets to squat toilets. Written for travelers used to Western toilets, this guide includes practical information on using unfamiliar facilities, discusses related health issues, and provides anecdotes from fellow travelers.
• Inflammatory Bowel Disease: A Guide for Patients and Their Families by Stanley H. Stein, M.D., and Richard P. Rood, M.D., (1998): Available at CCFA Bookstores, this book is a complete resource for everyone affected by IBD directly or indirectly. It provides practical and thorough information in an easy-to-understand, friendly tone. Some topics covered include pregnancy, diet and nutrition, emotional impact, and medical therapy.
• The Intelligent Patient’s Guide to the Doctor-Patient Relationship: Learning How to Talk so Your Doctor Will Listen Barbara M. Korsch, M.D., and Caroline Harding, Oxford Press, (1997): This book teaches readers hot to ask the right questions and understand the doctor’s answers. This is an excellent resource for all people who are concerned about taking control of their health and getting the most out of a doctor’s visit.
• Kitchen Table Wisdom: Stories that Hal by Rachel Naomi Remen, M.D., Riverhead Books, (1997): The author has a background as a prominent physician, a professor of medicine, a therapist, and a long-term survivor of chronic illness. In the form of a collection of true stories, she presents examples from practice and her own personal experiences.
• The Physician Within: A Step-By-Step Guide to Living Well With Chronic Illness by Catherine Feste, (1995): This book confronts many issues associated with chronic illness by providing supportive messages and tips, including controlling stress, developing a positive self-image, and adapting to life’s challenges.