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Center for Inflammatory Bowel Disease

 Center for Inflammatory Bowel Disease
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 Gastroenterology/Nutrition
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Flower What to Expect
What kinds of tests will my child need?
Image As needed the gastroenterologist may require some testing for patients. These include, but are not limited to:
  • blood tests
  • stool samples
  • ultrasounds and other radiological procedures
  • endoscopy or colonoscopy
Blood tests and stool samples could be requested at the first visit, but all other tests will be thoroughly described and scheduled on a second date.
Will it hurt?
The necessary testing may cause some discomfort for the child. More invasive procedures will use sedation or anesthesia when appropriate.
How should a child/parent prepare before coming to the hospital?
Image Please make sure that medical records are sent to our center before attending a second opinion appointment. To make your visit here as complete and useful as possible our physicians will need:
  • All clinic notes and lab results from their current pediatric gastroenterologist
  • Pathology reports and biopsy slides from previous endoscopic procedures
  • Films and reports from any radiology testing (ultrasound, UGI w/sbft, etc.)
  • Growth chart from the primary care physician
  • List of medications
What can we expect afterward?
Image Close monitoring and follow up visits are essential to keep your child as healthy as possible. Keeping doctor's appointments and taking the medications prescribed daily is the best way to stay healthy.

Additionally, the IBD Center recently created a take-home binder full of information about Crohn's disease and ulcerative colitis for newly diagnosed patients. It will help familiarize patients and their families with the staff they will encounter during their care at Children's and the various clinical terms they may hear throughout the course of their disease, as well as empower them to keep track of their illness.

What can we do if we have questions?
Our administrative and nursing staff is available weekdays from 8 a.m. to 4:30 p.m. You are welcome to call our office at 617-355-2962 with any questions about upcoming appointments or your child's health. In the event of an emergency please call the hospital page operators at 617-355-6369 and ask to have the GI fellow on call paged.
Image Outside resources are also available. The Center for Inflammatory Bowel Disease is closely associated with The Crohn's and Colitis Foundation of America. The CCFA sponsors basic and clinical research of the highest quality. The foundation also offers a wide range of educational programs for patients and health-care professionals, and provides supportive services to help people cope with these chronic intestinal diseases. These programs are supported solely by contributions from the public. For more information please visit their website: www.ccfa.org.
Other resources
The IBD Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to contend with pediatric IBD. It represents the "collective wisdom" of these families as well as their health care providers. www.experiencejournal.com/ibd.
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