Children's Hospital Boston  300 Longwood Avenue
Boston, MA 02115
(617) 355-6000
 X
Clinical Services (Congenital Diaphragmatic Hernia Program):
CDH News Archive
Our CDH research team publishes regular newsletters for patients and families, the Congenital Diaphragmatic Hernia Study Newsletter (or CDH News). These newsletters include:
  • Updates on our CDH research
  • Helpful articles for families who have a child born with CDH
  • Patient's stories
Click on any of the issues to view a complete copy as a pdf. To download, right-click and "Save Target As..." to your desktop. Requires Adobe Reader.
Issue 1, February 2006
Covered topics:
  • Overview of our CDH research study
  • Genetics 101: understanding genetics of CDH
  • What is CDH?
  • New CDH Findings: Fog2 Gene Is Required for Normal Diaphragm and Lung Development in Mice and Humans
Issue 2, February 2007
Covered topics:
  • Update on our CDH research study
  • New CDH Findings: Changes in the Megalin Gene Can Cause CDH
  • I just gave birth to a child with CDH. Could it happen again?
  • What is ECMO?
  • Coping with CDH
  • Tanina's Story
  • Trey's Story
  • List of Useful Websites and Support Groups
Issue 3, May 2008
Covered topics:
  • Update on our CDH research study
  • Few words on CDH Awareness Day
  • Summary of a research study from CDH Study Group
  • Feeding in Children with CDH: What to Expect?
  • Shane's Story
  • Bryant's Story
Issue 4, July 2009
Covered topics:
  • Update on our CDH research study
  • Fetal Tissue Engineering
  • Developmental Overview of Children with CDH
  • Shuami's Story
  • CHERUBS Family Meeting 2009
 X
 X The information on this website should not be taken as medical advice,
which can only be given to you by your personal health care professional.
 X
 X Copyright © Children's Hospital Boston. All rights reserved.