|
|
 |
 | ||
|
|
| ||
|
CDH News Archive |
|
|
Our CDH research team publishes regular newsletters for patients and families, the Congenital Diaphragmatic Hernia Study Newsletter (or CDH News). These newsletters include:
- Updates on our CDH research
- Helpful articles for families who have a child born with CDH
- Patient's stories
Click on any of the issues to view a complete copy as a pdf. To download, right-click and "Save Target As..." to your desktop. Requires Adobe Reader.
|
|
|
|
Issue 1, February 2006
|
|
Covered topics:
|
- Overview of our CDH research study
- Genetics 101: understanding genetics of CDH
- What is CDH?
- New CDH Findings: Fog2 Gene Is Required for Normal Diaphragm and Lung Development in Mice and Humans
|
|
Issue 2, February 2007
|
|
Covered topics:
|
- Update on our CDH research study
- New CDH Findings: Changes in the Megalin Gene Can Cause CDH
- I just gave birth to a child with CDH. Could it happen again?
- What is ECMO?
- Coping with CDH
- Tanina's Story
- Trey's Story
- List of Useful Websites and Support Groups
|
|
Issue 3, May 2008
|
|
Covered topics:
|
- Update on our CDH research study
- Few words on CDH Awareness Day
- Summary of a research study from CDH Study Group
- Feeding in Children with CDH: What to Expect?
- Shane's Story
- Bryant's Story
|
|
Issue 4, July 2009
|
|
Covered topics:
|
- Update on our CDH research study
- Fetal Tissue Engineering
- Developmental Overview of Children with CDH
- Shuami's Story
- CHERUBS Family Meeting 2009
|
|
|
|
