Congenital Diaphragmatic Hernia Program

Study Update

Our CDH research team publishes regular newsletters for patients and families, the Congenital Diaphragmatic Hernia Study Newsletter (or CDH News). These newsletters include:

• Updates on our CDH research
• Helpful articles for families who have a child born with CDH
• Patient's stories

Issue 6, September 2012
Covered topics:

• Update on our CDH Research Study
• Lung Problems & CDH
• Adrienne's Story
• Lucas's Story

Issue 5, May 2010  
Covered topics:

• Update on our CDH research study
• Hearing Loss & CDH
• CDH Facts
• Candace's Story
• Terry's Story

Issue 4, July 2009
Covered topics:

• Update on our CDH research study
• Fetal Tissue Engineering
• Developmental Overview of Children with CDH
• Shuami's Story
• CHERUBS Family Meeting 2009

Issue 3, May 2008
Covered topics:

• Update on our CDH research study
• Few words on CDH Awareness Day
• Summary of a research study from CDH Study Group
• Feeding in Children with CDH: What to Expect?
• Shane's Story
• Bryant's Story

Issue 2, February 2007
Covered topics:

• Update on our CDH research study
• New CDH Findings: Changes in the Megalin Gene Can Cause CDH
• I just gave birth to a child with CDH. Could it happen again?
• What is ECMO?
• Coping with CDH
• Tanina's Story
• Trey's Story
• List of Useful Websites and Support Groups

Issue 1, February 2006 
Covered topics:

• Overview of our CDH research study
• Genetics 101: understanding genetics of CDH
• What is CDH?
• New CDH Findings: Fog2 Gene Is Required for Normal Diaphragm and Lung Development in Mice and Humans