One of the goals of the Medical Coping Team at Children's Hospital Boston is to use a computer-based application designed to help children and their families cope with significant pediatric illness.
With support from Mitsubishi Electric Research Laboratories, Inc, the Noonan Foundation and Tellabs Foundation, Drs. David R. DeMaso and Joseph Gonzalez-Heydrich have developed the Experience Journal.
About the Journal
The Experience Journal is designed to promote the healthy coping of children and their families who face significant physical and emotional illnesses. It is a collection of stories, pictures and personal experiences from families about what it has been like to live with their children's illnesses.
It has been shown to be a safe and useful program for families facing heart disease, childhood depression, inflammatory bowel disease, solid organ transplant and obesity.
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