300 Longwood Avenue Boston, MA 02115 (617) 355-6000 Clinical Services (Rett Syndrome Program): Helpful Links Autism, Aspergers & Pervasive Developmental Disorders provides over 300 fact sheets of information for everyone affected by these disorders, whether directly or indirectly. There is an emphasis on practical strategies. International Rett Syndrome Foundation is dedicated to providing families with the latest medical information and support and raises public awareness and advocates for those living with Rett syndrome. National Institute of Neurological Disorders and Stroke provides a Rett Syndrome Fact Sheet with information about the disorder and its prognosis, treatment and research. Rett Syndrome Association of Massachusetts is a non-profit organization founded in 1989 by a group of parents and professionals to provide support, education and information to area families as well as to the medical and educational communities. The Autism Consortium is a group of researchers, clinicians and families dedicated to accelerating research and enhancing clinical care for autism. The Rett Syndrome Research Trust is a newly formed nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. The information on this website should not be taken as medical advice, which can only be given to you by your personal health care professional. Copyright © Children's Hospital Boston. All rights reserved.