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Rett Syndrome Program

 Rett Syndrome Program
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Locations Address Contact
Boston Rett Syndrome Program
Children's Hospital Boston
300 Longwood Ave.
Boston, MA 02115
Phone: 617-355-8994
For more information about the Rett Syndrome Program or to make an appointment, please contact Alicia Kutner, program administrator, at 617-355-8994.
Rett Syndrome Parent Advisory Group
Irene Gladstone (Chair)
Rett Syndrome Association of Massachusetts
781-444-8164

Other members:
Jennifer Endres. International Rett Syndrome Foundation
Jane Joyce
Michele Wise
Cheryl Campbell
Patrick Courtney
Erin Walter

Cathy Merrill
Rett Syndrome Program Scientific Advisors
Monica Coenraads - Co-founder and Director of Research of the Rett Syndrome Research Foundation
Elizabeth Engle, MD, PhD - Associate Professor and Senior Associate in Neurology and Genomics
Michael Greenberg, PhD - Professor and F. M. Kirby Director, CHB Program in Neurobiology
Mriganka Sur, PhD - Sherman Fairchild Professor of Neuroscience and Head, MIT Dept of Brain and Cognitive Science

For international visitors
For families residing outside of the United States, please contact Children's International Center which facilitates the medical review of patient records and appointment scheduling and provides assistance with customs and immigration, transportation, hotel and housing accommodations.
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