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Rett Syndrome Program

In our Rett Syndrome Program at Children’s Hospital Boston, we are dedicated to helping children and adults who have Rett syndrome and related conditions develop to their full potential.

The symptoms of Rett syndrome often can be helped with specialized medical care and behavioral and rehabilitative therapies. We bring together a team of physicians and therapists from various fields who have expertise and experience in caring for children with Rett syndrome, and together we provide continuous, close care for our patients.

Our aim is to work with your child and family to choose the best combination of therapies and medication to manage your child’s symptoms and to help her learn and develop.

We are optimistic about recent scientific developments about Rett syndrome, and our program is collaborating with researchers to translate their discoveries into meaningful treatments for our patients.
 

Drug trial: IGF-1

Our Rett Syndrome Program at Children’s has opened a randomized clinical trial of the drug IGF-1 to treat children with Rett syndrome. 

For more information about the IGF-1 trial:

Research study: The natural history of Rett syndrome

The Rett Syndrome Program at Children's Hospital Boston is also conducting a natural history study to learn more about Rett syndrome.

For more information about this study:

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