Genetics Program

Helpful resources

This page contains links to websites with information about support groups for parents. We hope that you find these sites helpful, but please remember we do not control or endorse the information presented on these websites, nor do these sites endorse the information contained here. Your geneticist or genetic counselor may be able to provide additional resources.

Alliance of Genetic Support Groups

www.geneticalliance.org
National Down Syndrome Congress
7000 Peachtree-Dunwoody Road, N.E. Building 5, Suite 100
Atlanta, GA 30324
1-800-232-NDSC or (770) 604-9500

National Organization for Rare Disorders, Inc. (NORD)

www.rarediseases.org
P.O. Box 8923
New Fairfield, CT 06812
(203) 746-6518