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The Cystic Fibrosis Center recognizes the central role of families in the care of children with cystic fibrosis. In fact, we encourage family participation and welcome them as partners in the care of their child.
As part of this commitment, we have created a CF Center Steering Committee to help us better understand the concerns of our patients and their families.
The committee is made up of members of our care team and two parent/patient representatives.
Patient Representative
Joan Finnegan-Brooks (Adult patient with CF)
617-312-0931
Email
Parent Representative
Ellen Brown-Schwanke (Mother of a child with CF)
781-608-8174
Email
The committee meets monthly to review all aspects of our CF Center, and is working on several programs to improve our care.
If you are a CF patient or the parent of a CF patient, we encourage you to contact Joan, Ellen or our office with any comments or concerns that you have regarding our center.
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