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Cystic Fibrosis Center

Who we are

Photo of Child Life specialist and child at bedside.
Child life specialist with patient

The Cystic Fibrosis Center at Children's Hospital Boston is one of the oldest and largest cystic fibrosis centers in the United States. Caring for more than 500 children and adults each year, the CF Center provides comprehensive services, ranging from evaluation and diagnosis to treatment and patient education.

The CF Center is proud to report that our patients continue to fare in the top 10 to 20 percent of patients nationwide for a variety of health parameters, including lung function and nutritional status.

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Cystic Fibrosis Family Night

Click on the link below to watch the presentations from our annual Cystic Fibrosis Family Night, which was held on March 14th.

Presentations

Expertise that goes deep and reaches far

Children’s CF Center is staffed by an experienced team of clinicians, all of whom have specialized training in the care of patients with cystic fibrosis. Our multidisciplinary staff includes:

  • pulmonologists
  • pulmonary nurses
  • gastroenterologists
  • nurse practitioner
  • nutritionists
  • social workers
  • physical therapists
  • respiratory technologists

Our staff is involved in CF programs within the community, educates physician trainees at Harvard Medical School and is actively engaged in research into new treatments for cystic fibrosis—including potential therapies that target the lungs and digestive system and new treatments to correct the problems that cause CF.

Quality Care Award

Recognizing Outstanding QI Processes and Accomplishments

The Cystic Fibrosis Center was recently selected as one of the 2009 recipients of the annual Cystic Fibrosis Foundation’s Quality Care Award: Recognizing Outstanding QI Processes and Accomplishments. To be considered for the award, an organization must show sustained quality improvement work that improved outcomes; actively use clinical outcomes data to identify opportunities for improvement; document results of improvement efforts; involve patients and families in identifying, designing and implementing improvement efforts; employ innovative strategies to improve care processes and outcomes; and implement system changes that result in high reliability of care processes.

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