Craniofacial Anomalies Program

Information and support for parents and families

Please note that neither Children’s Hospital Boston nor the Craniofacial Anomalies Program at Children’s unreservedly endorses all of the information found at the sites listed below. These links are provided as a resource.
 

General craniofacial anomaly resources

• AboutFace International

• Changing Faces

• Children’s Craniofacial Association

• FACES: The National Craniofacial Association

• Federation for Children with Special Needs

• Forward Face

• Foundation for Faces of Children

• Headlines: The Craniofacial Support Group

• International Craniofacial Institute

• MUMS National Parent-to-Parent Network

• Operation Smile

• World Craniofacial Foundation
   

Cleft lip and cleft palate resources

• Cleft Advocate

• Cleft Lip and Palate Association

• Cleft Palate Foundation

• Smiles

• Smile Train

• The Cleft Club Online Support Group
   

Craniosynostosis resources

• Cranio Kids: Fun Friends and Craniosynostosis Support

• Craniosynostosis and Positional Plagiocephaly Support, Inc.

• DailyStrength.org: Craniosynostosis & Plagiocephaly Support Group

• Facebook Group: Craniosynostosis Support for Parents and Guardians

• Jorge Posada Foundation
   

Hemifacial microsomia resources

• Hemifacial Microsomia Forum on Craniology.org
   

Hemangioma/vascular malformation resources

• Angioma Alliance

• Birthmarks and Hemangiomas InterNETwork Support

• Birthmarks and Hemangiomas Support Group at iVillage.com

• National Organization of Vascular Anomalies

• Vascular Birthmarks Foundation