Resources for families
We understand that you probably have a lot of questions if your child has just been diagnosed with a neuromuscular disease. How will it affect my child? Is there a cure? What do we do next? The specialists in our Neuromuscular Program at Children’s Hospital Boston will explain your child’s condition fully and will discuss any questions you have. The following websites may also be helpful to you.
Please note that neither Children’s Hospital Boston nor the Neuromuscular Program at Children’s unreservedly endorses all of the information found at the sites listed below.
The Muscular Dystrophy Association provides information about muscular dystrophies as well as many other neuromuscular diseases at their website. The site also gives a lot of information about services, support for your family and research.
Resources at Children’s
The Children’s For Patients and Families website offers information on the wide array of support services available to families at Children’s.