Fetal-Neonatal Neurology Program

Family resources

If your child has just been diagnosed with a neurological disorder or if your doctor suspects that there may be a problem, you’re probably feeling overwhelmed. Please know that we will explain your child’s condition fully and answer any questions you have. If you wish, Children’s Hospital Boston can also put you in touch with other families who have experienced similar conditions.

The social worker on our team can connect you with Early Intervention programs, other clinics within the hospital and providers in your community. She can help to get you the support you need—everything from helping you get health insurance coverage and organizing transportation to getting counseling for you and your family.

You may also want to visit the Children’s For Patients and Families website for information on the wide array of support services available to families at Children’s.

This education sheet offers information for parents on the Children’s Hospital Boston hypothermia protocol for hypoxia-ischemia.