Resources for families
Our team in the Mitochondrial Program at Children’s Hospital Boston will talk with you about your child’s condition, discuss any questions you have and try to help you find the support you need. The following resources may also be helpful to you.
Please note that neither Children’s Hospital Boston nor the Mitochondrial Program at Children’s unreservedly endorses all of the information found at the sites listed below. These links are provided solely as a resource.
MitoAction is an organization based in the Boston area whose purpose is to support patients with mitochondrial disorders and their families. Irina Anselm, MD, director of Children's Mitochondrial Program, is a member of MitoAction’s medical advisory board and is very involved in their efforts to provide education on mitochondrial medicine for patients and families.
- The United Mitochondrial Disease Foundation offers support for families of children with mitochondrial disease and provides funds for research.
Resources at Children’s
The Children’s For Patients and Families website offers information on the wide array of support services available to patients and their families.