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Epilepsy Program

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Flower Ketogenic Diet
The Ketogenic Diet is a medically prescribed diet which causes ketones to build up in the body (ketosis) which can result in improved seizure control.

First things first: what is ketosis?
Ketosis occurs when the body changes from using the end-product of carbohydrate breakdown, (glucose) to using the end-product of fat breakdown (ketones) for energy production. The body produces ketones when fasting, or when a high fat, low carbohydrate diet is provided. It is believed that this build-up of ketone bodies in the blood is responsible for seizure control in some patients. Following the Ketogenic Diet carefully allows the body to stay in a constant state of ketosis.

What is the Ketogenic Diet?
The Ketogenic Diet is an individually designed and medically prescribed diet. It strictly limits carbohydrate, and provides a high fat and an adequate protein intake for growth and health. It is not a natural diet. Meals are designed by the dedicated Ketogenic Diet dietitian, and the proportions of fats, carbohydrates and proteins are carefully measured out for each meal at home. A typical meal will include:

  • a small amount of protein (meat, egg, cheese, etc.)
  • a small amount of carbohydrates (fruit or vegetable)
  • a larger amount of fat (heavy cream, butter, oil, mayonnaise, etc.).
Children requiring a feeding tube can follow this diet using a special formula.

Just like the medications used for epilepsy, the Ketogenic Diet can have medical side effects. Though it is usually well tolerated, regular medical supervision is provided once the diet has been started. In some patients, for whom medications have failed to control seizures, or cause significant side effects, the Ketogenic Diet offers an alternative approach that can significantly improve seizure control. Some children become seizure free, while others can achieve a reduction in anticonvulsant drugs or dosages.

How do we start the Ketogenic Diet?
The Ketogenic diet is started in hospital, so we can monitor your child's toleration for the diet and your child's safety as the body adjusts to using ketones for energy. It usually takes 3-5 days to accomplish this. During that time, as well as medical monitoring, the very experienced Ketogenic Diet dietitians will provide education and guidance for managing the diet at home. After discharge, you will have access to ongoing support of the multidisciplinary Ketogenic Diet team, which includes doctors, nurses, social workers and nutritionists. You will be required to come to the Ketogenic Diet Clinic soon after discharge, and thereafter on a regular basis, so we can monitor your child's health.

Family commitment and regular follow up by a team of health care professionals specializing in the ketogenic diet is essential for the diet to be safe and successful.

Who do we call to see if the Ketogenic Diet will work for us?
For more information about the diet, please contact Cheryl Cahill, RN, MSN, our Ketogenic Diet nurse at 617-355-6815. At this number you can also schedule an appointment for an evaluation at the Ketogenic Diet Clinic where you can meet our team.

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Need more information?
For a more comprehensive description, read the book "The Ketogenic Diet: A Treatment for Epilepsy" by John Freeman, M.D., Millicent Kelly, R.D. and Jennifer Freeman. The book "Keto Kid" by Deborah Snyder is written from a parent's perspective. Other useful resources include the following websites: Epilepsy.com, The Charlie Foundation at www.charliefoundation.com, and Matthews Friends at www.matthewsfriends.com
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