Spina Bifida (Myelodysplasia) Program

Information and support for parents and families

Please note that neither Children’s Hospital Boston nor the Spina Bifida Program at Children’s unreservedly endorses all of the information found at the sites listed below. These links are provided as a resource.

• Camp MITIOG – A Camp for Children with Spina Bifida
• For Children and Adults with Spina Bifida and Hydrocephalus
• International Federation for Spina Bifida and Hydrocephalus
• Society for Research into Hydrocephalus and Spina Bifida
• Spina Bifida Association
• Spina Bifida Connection Support Forum
• Spina Bifida Moms and Dads Discussion Group 
• Spina Bifida Parents Discussion Group
• Straight Talk About Bedwetting: Speaking to Siblings of Special Needs Kids
• Welcoming Babies with Spina Bifida
• Words that Heal: Incontinence Solutions for Special Needs Kids