The Myelodysplasia Program at Children's Hospital Boston is one of the oldest and largest comprehensive, interdisciplinary centers for the care of children with spina bifida in the country.
Myelodysplasia, also called spina bifida, refers to a number of conditions caused by neural tube defects. In affected children there is, to a varying degree, a failure of formation of the spinal cord, brain, and spinal column. This can sometimes cause multi-system disorders.
The Myelodysplasia Team at Children's consists of specialists in many fields that share an interest and expertise in myelodysplasia: - pediatricians,
- neurosurgeons,
- orthopedic surgeons,
- urologists,
- neuropsychologists
- physical therapists,
- social workers,
- nurses,
- specialists from renal medicine and endocrinology.
The Myelodysplasia Team also works closely with other services at Children's including Genetics, Neurology, Pulmonary, Cardiology and Nutrition.
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