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Here we provide a list of suggested links. Although we have reviewed the content of these sites and believe they offer appropriate information on neuromuscular disease and related topics, we are not responsible for the actual publications on these sites. Any concerns related to the contents of any of these Web sites should be directed to the webmaster of the linked site.
Family Oriented
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Family Village
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Provides information on disability-related issues, family resources, services, and much more.
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Joshua Frase Foundation
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Created by the parents of Joshua Frase, the Joshua Frase Foundation sponsors part of our research on myotubular myopathy. The Foundation's Web site provides information about this condition as well as upcoming events, useful links, etc.
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Muscular Dystrophy Association (MDA)
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Sponsoring hundreds of research projects on neuromuscular diseases, the MDA provides listings of active clinical trials, information on muscular disease, as well as available services and resources.
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The Centronuclear and Myotubular Myopathy Information Point
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A British information point for all individuals with centronuclear and myotubular myopathy, their families and carers.
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Nemaline Myopathy Web site
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Created and designed by David Mc Dougall, the nemaline myopathy (NM) Web site is a complete, well-established online resource for individuals with nemaline myopathy and their families. Meet other families around the world by becoming a member of the warm, lively and supportive NM group.
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Sibling Support Project
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Based on the belief that an illness or disability affects all family members, the Sibling Support Project focuses on the interests of brothers and sisters of individuals with disabilities.
Databases
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GeneTests
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A database for health care providers including information about laboratories offering clinical and research-based genetic testing. Requires registration.
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On-line Medical Dictionary
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A reliable, fast-growing database providing definitions of lots of medical terms. Search by subject or browse through alphabetical list.
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Online Mendelian Inheritance in Man (OMIM)
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A trademark of Johns Hopkins University, OMIM is a comprehensive database including information about many genetic disorders in humans as well as related science-based Web sites.
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PubMed
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Millions of scientific articles are accessible through this free, very up-to-date online resource.
More Beggs Lab Information
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Harvard Neuromuscular Disease Project
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A collaborative project among researchers at Children's Hospital Boston and Massachusetts General Hospital that aims to study gene expression in normal and diseased muscle.
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Harvard Medical School PhD Program in Biological and Biomedical Sciences - The Beggs Lab
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A page describing Dr. Beggs's research as a faculty member of the Harvard Medical School PhD Program.
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Children's Hospital Mental Retardation & Developmental Disabilities Research Center (MRRC) - The Beggs Lab
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A page describing the MRRC projects led by Dr. Beggs.
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