Are there any costs associated with participation in this research?
There is no fee for you to participate in our research. Expenses for blood drawing and shipment of specimens to Boston will be paid for by the study.

Is there any compensation for the time involved?
Participants are not paid or otherwise compensated for participation in this study.

Will the costs associated with travel, child care, or special services be reimbursed?
Travel to Boston is not required. Costs associated with childcare and special services are not reimbursed by this study.

What additional health care costs may be associated with participation in this study?
There is a possibility that we are able to find information that is clinically relevant to the family. If so, we can have results confirmed by a CLIA-certified lab. There will most likely be a charge associated with this confirmation testing, which will vary depending on the laboratory. Most CLIA laboratories will require fresh blood samples in order to ensure the accuracy of the results.