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There are many ways you can help children and their families get the care they need.
Robert’s Program works with the Massachusetts Office of the Chief Medical Examiner (OCME) to evaluate the cases of children who die suddenly and unexpectedly under the age of three in Massachusetts. We provide testing for metabolic, cardiac and neurologic abnormalities. We also complete a full assessment of the family medical history and relevant genetic testing of the parents when they consent to participation.
Our program currently focuses on Massachusetts, but we are available to informally discuss cases where you find things discussed in the latest research. We are also happy to receive research referrals from around the country.
We have a mutual partnership and strong collaboration with the Massachusetts OCME to evaluate a child’s death with enhanced neurological and genetic testing. The unique relationship of Robert’s Program with the OCME works to standardize nomenclature and improve communication with bereaved families through explanation and support.
We are happy to include primary medical providers in our discussion with the family and share our conclusions regarding their patients.
For further information on sudden unexpected death in pediatrics, you can visit the following websites:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”