Robert’s Program | Overview

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Contact the Robert's Program

Robert’s Program is a service offered to families in Massachusetts who have lost a child under the age of three years suddenly and unexpectedly.

Based at Boston Children's Hospital, our program brings together teams of the top doctors in their fields to apply new technologies and discoveries to every family whose child has succumbed suddenly and unexpectedly.

Our team has the most current medical knowledge of sudden and unexpected death. They have been studying sudden unexpected death in pediatrics (SUDP) - which encompasses sudden infant death syndrome (SIDS) and sudden unexpected death in childhood (SUDC) - for more than 20 years.

Our far-reaching program involves clinicians and scientists from the fields of:

  • general pediatrics
  • cardiology
  • endocrinology
  • metabolism
  • neurology
  • emergency medicine
  • psychiatry
  • palliative care
  • genetics, public health
  • pediatric and forensic pathology
  • neuropathology

We work collaboratively with

  • the Massachusetts Office of the Chief Medical Examiner (OCME)
  • the Massachusetts Center for Sudden Infant Death Syndrome (SIDS).
  • the Massachusetts Infant and Child Death Bereavement Program

Mission

  • To provide comprehensive clinical care to families that have suffered the sudden and unexpected death of a child under the age of three due to natural causes, including:
    • the review of autopsy information and providing and independent diagnostic opinion
    • potential recommendations for additional testing
    • genetic counseling
    • assessment of risk to siblings or future children
    • bereavement support.
  • To perform state-of-the-art research into sudden unexpected death in pediatrics (SUDP), that is, sudden death in children under the age of three that is currently unexplained, including:
    • SUID - Sudden Unexpected Infant Death
    • SIDS - Sudden Infant Death Syndrome
    • SUDC - Sudden Unexplained Death in Childhood
    • SUDEP - Sudden Unexplained Death in Epilepsy

For more information please visit Frequently asked Questions.

Contact Us

Address:
Robert’s Program
Boston Children’s Hospital
61 Binney Street
Enders 1119
Boston, MA 02115

Phone: 617-919-4513
Fax: 617-730-0148
Email: robertsprogram@childrens.harvard.edu

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

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