Vascular Anomalies Center Patient Stories

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The Vascular Anomalies Experience Journal

The Vascular Anomalies Experience Journal is a collection of stories, videos, and personal experiences from patients, families and providers about describing life with a vascular anomaly. The Journal represents the vascular anomalies community's “collective wisdom,” and touches on all aspects of what it means to have a vascular anomaly. We invite you to visit and explore the Experience Journal.

If you’re interested in sharing your or your family’s story, visit the Experience Journal submission page.

In Arianna's own words

Arianna Faro struggled for years with the challenges of living with Klippel-Trenaunay (KT) syndrome, but won't let her disease stop her. Read her story.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944