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There are many ways you can help children and their families get the care they need.
Vascular anomalies represent a rare set of conditions, often appearing and behaving differently from patient to patient. Many of these anomalies, however, have one thing in common: the need for specialized, interdisciplinary care from clinicians with experience in the management of these disorders.
Some vascular anomalies, such as a small, single hemangioma, are not likely to require any intervention; your pediatrician may be able to monitor the tumor, provide support and reassurance, and contact a vascular anomalies specialist if the situation warrants.
However, you should seek out a vascular anomalies specialist if:
Ideally, vascular anomalies specialists work in interdisciplinary teams whose primary or sole focus is the diagnosis and treatment of these rare conditions. Generally speaking, such teams are to be found in major pediatric teaching hospitals, such as Boston Children's Hospital.
Because vascular anomalies often affect many organ systems, an interdisciplinary approach to the care of children with complex vascular anomalies is especially important. This means that your child should be cared for by specialists who represent several different areas of medical expertise, such as:
Working together, such interdisciplinary teams leverage their combined expertise to achieve the best possible results.
To find a hospital that has a vascular anomalies team, ask your pediatrician, contact the nearest major pediatric teaching hospital or contact Boston Children's Hospital for an appointment.
Questions You Should Ask
Here are some questions you should ask of your clinician(s) before deciding where your child will receive care:
These and other questions should help you find the vascular anomalies specialist/team that can provide your child with the best possible care.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”