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A vascular anomaly can elicit a range of emotions for parents, the affected child and the entire family, especially if it is prominent. Even those anomalies that will ultimately go away invariably challenge parental coping skills and children's self-esteem.
Fortunately, there are resources available to help families weather the emotional ups and downs that invariably occur. And with adequate information and continued support and guidance, most parents and patients find they are able to manage very well. Many of these resources are available through the Vascular Anomalies Center. And we can help patients who live far away seek and connect with resources closer to home.
As a helpful resource, we have compiled a directory of advocacy and support groups that focus on vascular anomalies. In addition, we invite you to explore the Vascular Anomalies Experience Journal, a collection of stories, videos and personal experiences that represents the vascular anomalies community's “collective wisdom,” touching on all aspects of what it means to have a vascular anomaly.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”