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There are many ways you can help children and their families get the care they need.
The specialists in the Vascular Anomalies Center (VAC) at Boston Children's Hospital are available to consult with physicians seeking information about the entire spectrum of vascular anomalies, or wishing to discuss the diagnosis and management of a specific patient. The staff works collaboratively with referring physicians, involving them in decisions about their patient's care, maintaining regular communication and, whenever feasible, providing referrals to specialists close to the patient's home.
Physicians may contact a specific VAC physician directly, or contact the VAC coordinator, who can help arrange a consultation with an appropriate specialist.
In 2014, the International Society for the Study of Vascular Anomalies (ISSVA) released a standardized nomenclature guide for classifying vascular anomalies. This guide represents the field's consensus for defining and naming the known vascular anomalies
Every week, the VAC's team of physicians meets to review medical histories, photographs, radiographic images and pathology slides sent in by referring physicians across the United States and around the globe. Learn more about the VAC conference, and how to submit a case for review.
Many vascular anomalies are rare disorders, and there is relatively little information available about long-term effects, treatments and outcomes. Because the limited number of patients with these disorders are spread across the globe, it is very important that we gather patient data from multiple institutions and patients in a centralized registry, with the goal of expediting clinical understanding and improving care. The VAC has established two data registries for patients with vascular anomalies and their providers.
The Infantile Hepatic Hemangioma Registry collects information regarding the radiographic, physiologic and biochemical presentation of hepatic hemangiomas, their clinical progression and their response to treatment.
The Lymphatic Anomalies Registry is seeking to collect clinical data from patients that could improve our understanding of lymphatic anomalies, including what complications to expect, which therapies are more effective than others, predictors of disease stability and/or recurrence and inheritance patterns.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”