At Boston Children’s Hospital, we understand that receiving a diagnosis of type 2 diabetes can feel very overwhelming. Keep in mind that many children and their families have been down this path before. Experts in our Type 2 Diabetes Program have already helped them, and we can help you, too.
Boston Children’s resources
The resources available for your family within Boston Children’s include:
- Patient education: From the very first visit, our staff will be on hand to walk you through your child’s treatment and help answer any questions you may have. They’ll also reach out to you by phone, continuing the care and support you received while at Boston Children’s.
- Social work and mental health professionals: Our social workers and mental health clinicians have helped many other families in your situation. We can offer counseling and assistance with issues such as coping with your child’s diagnosis, stresses relating to coping with illness and dealing with financial difficulties.
- Experience Journal: The Experience Journal, developed at Boston Children’s, is a collection of stories, pictures and personal experience from families and health care providers about what it is like to experience children’s illnesses. Visit the Diabetes Experience Journal and Overweight Experience Journal.
There are also many resources available in the outside community and online where you can learn more about living with diabetes.
Here are some websites that other families have found helpful:
- WGBH, the Southern New England affiliate of the Public Broadcasting Service (PBS), put together a website for teens and young adults with type 2 diabetes called Living with MyType2. Erinn Rhodes, MD, MPH, director of the Type 2 Diabetes Program at Boston Children's, served as the medical advisor for the website.
- The American Diabetes Association (ADA) offers the basic facts about diabetes treatment, as well as issues related to the condition that patients and families may face in the months and years ahead.
- You can also download a blood glucose journal from the ADA.
- The United States Centers for Disease Control and Prevention (CDC) has set up a public health resource with information about the disease, including research, statistics and educational materials.
- Children with Diabetes is a support group that promotes understanding of the care and treatment of diabetes, supports families living with it and aims to increase awareness of the need for better diabetes care for children at school and day care.
- The Juvenile Diabetes Research Foundation International, founded by parents of children with juvenile diabetes, is looking to find a cure for diabetes through research.
- The National Diabetes Education Program has information about diabetes, including ways to control and prevent the disease. Information for parents, children and high-risk minority populations is also available, including materials in Spanish, Asian and Pacific Islander languages.
- TuDiabetes is a social networking site for patients and families affected by diabetes. The site includes a data analysis program developed in collaboration with researchers at Boston Children's. Communities in Spanish available are also available.