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At Boston Children’s, we consider you and your child integral parts of the care team—not simply recipients of care. We specialize in family-centered treatment, which means that from your first visit to our Tethered Spinal Cord Syndrome Program, you’ll work with a team of professionals who are committed to meeting your child's medical and surgical needs while providing emotional, psychosocial and educational support for your family.
Your child’s Tethered Spinal Cord Syndrome appointment: FAQ
Please be sure you have the following information on hand:
your child’s full name, address, and date of birth
your (or, if you are not the child’s parent/legal guardian, the official guardian’s) full name, address, phone number and relationship to the child
your insurance provider’s name(for example, Blue Cross Blue Shield of Massachusetts), the name of the specific plan covering the child (for example, HMO Blue), and your subscriber identification number
the name, address, and phone number of your child’s primary care physician
the name, address, and phone number of your child’s referring physician (if different from the primary care provider)
a basic summary of your child’s symptoms and medical history, including any prior surgeries or treatment procedures
Or, you will have the option to sign a waiver and pay a $250 waiver fee. (We recommend that you pay the waiver fee by check or credit card, as this will make stopping payment easier should you get a referral by the next business day after your child’s appointment. We are able to refund your waiver fee if you call us at 617-355-60008 with the necessary referral information by noon the next business day).
If you get a referral more than 24 hours after your child’s appointment, you will have to wait for your insurance company to pay for the claim. This may take up to 90 days. Your waiver fee will be automatically returned to you once the insurance company pays the claim. (Unfortunately, since this process is fully automated, we are unable to expedite the return of the fee.) If, after 90 days, you still have not received your refund, please call our billing company at 1-800-853-8110.
explaining that the doctor you will be meeting is going to help find the best treatment so your child can feel better
visiting the Boston Children’s web site and taking a “virtual tour” of the hospital with your child
reassuring your child that you will be there throughout the appointment
encouraging your child to ask any questions that come to mind, both before and during the appointment
What should I bring to my child’s appointment?
When you make your initial appointment, a member of the Tethered Spinal Cord Syndrome Program staff will go over everything you’ll need on the day of your visit. A good checklist of take-along items should include:
the name of the doctor you will be seeing
the name and floor of the Children’s building you will be visiting
the name and telephone number of your referring physician
your insurance card(s)
co-payment for your insurance, if applicable
referrals or authorizations from your child's primary care doctor's office, if applicable
all medical or personal records, such as x-rays or lab tests, pertaining to your child’s condition
a list of your child's medications
a list of questions you have for the doctor and staff (if appropriate for your child's situation and maturity, you may want to have him or her come up with questions that he or she is curious about)
your child's and your Social Security numbers (for insurance purposes)
any forms mailed to you by the Tethered Spinal Cord Syndrome Program
books, games, snacks, formula, diapers, a change of baby clothes or other necessities (please do not bring food if your child must fast for testing)
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”