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This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

This department is currently not accepting appointment requests online. Please call us at: 617-355-6000. International +1-617-355-6000.

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Contact the Sturge-Weber Syndrome Program

  • 617-355-8994

Sturge-Weber Syndrome Clinic Overview

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In recognition of the comprehensive care our clinic provides, the Sturge-Weber Foundation has designated Boston Children's Hospital as one of 10 Centers of Excellence in the United States. The Sturge-Weber Foundation sees our collaborative approach to care, in particular, as tremendously beneficial to our patients.

At our clinic, we care for children who have Sturge-Weber syndrome (SWS)—a rare disorder characterized by a “port wine stain” birthmark on the face and neurological abnormalities. It is a congenital disorder, meaning that the child is born with it.

The disease can involve a range of complications: In addition to the birthmark, children may experience seizures, developmental delays, muscle weakness and eye problems. So a number of different specialists on our team may work together to care for your child.

With a range of specialists, we are able to provide your child with comprehensive care. Our team includes specialists from the fields of:

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO