Sturge-Weber Syndrome Clinic Your Visit

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Contact the Sturge-Weber Syndrome Program

  • 617-355-8994

When you come to your appointment at our Sturge-Weber Syndrome Clinic at Boston Children’s Hospital, please remember to bring:

  • insurance card(s)
  • name and telephone number of your referring physician
  • co-payment for office visit (if applicable)
  • any forms mailed to you by our office
  • any previous imaging (MRIs) your child has had

If you need to cancel an appointment, please call us at 617-355-8994. Please give us as much notice as possible—at least 24 hours—so that we may accommodate other patients.

During your first visit, you and your child will meet with a neurologist.  He will review your child’s medical history and perform a specialized physical exam. First visits usually last one hour.

You and your child may also need to meet with other specialists in our clinic. This usually requires a separate appointment, which can be scheduled before you leave. Diagnostic brain tests such as an MRI or EEG may be scheduled, as well.

You can find general information about coming to Boston Children's here.

The Neurology department website gives information on billing.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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