Spinal Muscular Atrophy (SMA) Program | Patient Resources

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Contact the Spinal Muscular Atrophy Program

  • 1-617-355-8235
  • International: +1-617-355-5209

Our team in the Spinal Muscular Atrophy Program at Boston Children’s Hospital will talk with you about your child’s condition, discuss any questions you have and try to help you find the support you need. The following resources may also be helpful to you.

Resources at Boston Children's

The Boston Children’s Patient Resources website offers information on the wide array of support services available to families at Boston Children’s.

Use the free Boston Children’s CarePages service to set up a unique web page for your child. CarePages makes it easy to stay in touch with family and friends when your child is undergoing treatment.

Resources outside of Boston Children's

Please note that neither Boston Children’s Hospital nor the Spinal Muscular Atrophy Program at Boston Children’s unreservedly endorses all of the information found at the sites listed below. These links are provided as a resource.

Our SMA Program is part of the Pediatric Neuromuscular Clinical Research (PNCR) Network. The group’s website offers a variety of information including educational materials on how clinical trials work.

The SMA Foundation promotes research and raises awareness about SMA. Their website offers educational materials and features news from the SMA community.

Cure SMA supports families, funds research, and hosts an annual conference. Their website also provides information from local chapters.

The Muscular Dystrophy Association funds research and provides support services for families affected by muscular dystrophy as well as other neuromuscular diseases including SMA.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

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