Spinal Muscular Atrophy Program Meet our Team

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Our Spinal Muscular Atrophy Program at Boston Children’s Hospital brings together diverse providers who are experts in the care of children with SMA. The program is directed by child neurologist Basil Darras, MD.

We have also created a network of other Boston Children’s specialists who are experienced in caring for children with SMA. While these individuals are not directly part of our multidisciplinary clinic, this collaboration can make it easier for families to find providers in other specialties who are knowledgeable about SMA. 

Basil Darras

Basil Darras, MD

Associate Neurologist-in-Chief; Chief-Division of Clinical Neurology, Director-Neuromuscular Center

Department: Neurology

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Fred Shapiro, MD

Frederic Shapiro, MD

Department: Orthopedic Surgery

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Susan Riley

Department: Physical Therapy and Occupational Therapy Services

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Robert Graham

Robert Graham, MD

Associate in Critical Care Medicine

Department: Critical Care Medicine

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Lauren Perlman, RT

Department: Pulmonary and Respiratory Diseases

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Stacey Tarrant, RD, LDN

Stacey Tarrant, RD, LDN

Clinical Nutrition Specialist

Department: Gastroenterology Nutrition

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Virginia Kharasch

Virginia Kharasch, MD

Pediatrician

Department: Medicine

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Lauren Glader

Laurie Glader, MD

Assistant in Medicine, Complex Care Services

Department: General Pediatrics

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Fishman MD

Laurie Fishman, MD

Attending Physician

Department: Gastroenterology Nutrition

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Navil Sethna

Navil Sethna, MC, ChB

Clinical Director of the PPRC; Senior Associate in Pain Medicine; Senior Associate in Perioperative Anesthesia

Department: Anesthesiology Perioperative and Pain Medicine

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Charles Berde

Charles Berde, MD, PhD

Division Chief, Pain Medicine; Division Chief, Pain Treatment Service; Senior Associate in Perioperative Anesthesia and Pain Medicine

Department: Anesthesiology Perioperative and Pain Medicine

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Craig Lillehei

Craig Lillehei, MD

Senior Associate in Surgery Transplant Surgeon

Department: Surgery

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Shuei Kozu

Department: Neurology

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