Spinal Muscular Atrophy Program | Meet our Team

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Our Spinal Muscular Atrophy Program at Boston Children’s Hospital brings together diverse providers who are experts in the care of children with SMA. The program is directed by child neurologist Basil Darras, MD.

We have also created a network of other Boston Children’s specialists who are experienced in caring for children with SMA. While these individuals are not directly part of our multidisciplinary clinic, this collaboration can make it easier for families to find providers in other specialties who are knowledgeable about SMA. 

Basil Darras

Basil Darras, MD

Associate Neurologist-in-chief; Chief-Division of Clinical Neurology, Director-Neuromuscular Center

Department: Neurology

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Susan Riley

Department: Physical Therapy and Occupational Therapy Services

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Robert Graham

Robert Graham, MD

Associate in Critical Care Medicine

Department: Critical Care Medicine

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Lauren  Perlman

Lauren Perlman, BS, RRT

Department: Pulmonary and Respiratory Diseases

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Stacey Tarrant, RD, LDN

Stacey Tarrant, RD, LDN

Clinical Nutrition Specialist

Department: Gastroenterology Hepatology Nutrition

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Virginia Kharasch

Virginia Kharasch, MD

Pediatrician

Department: Medicine

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Lauren Glader

Laurie Glader, MD

Associate in Medicine; Director, Complex Care Service Outpatient Program; Co-Director, Cerebral Palsy Program

Department: General Pediatrics

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Fishman MD

Laurie Fishman, MD

Attending Physician

Department: Gastroenterology Hepatology Nutrition

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Navil Sethna

Navil Sethna, MC, ChB

Clinical Director of the PPRC; Senior Associate in Pain Medicine; Senior Associate in Perioperative Anesthesia

Department: Anesthesiology Perioperative and Pain Medicine

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Charles Berde

Charles Berde, MD, PhD

Division Chief, Pain Medicine; Division Chief, Pain Treatment Service; Senior Associate in Perioperative Anesthesia and Pain Medicine

Department: Anesthesiology Perioperative and Pain Medicine

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Craig Lillehei

Craig Lillehei, MD

Senior Associate in Surgery Transplant Surgeon

Department: Surgery

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Shuei Kozu LICSW

Shuei Kozu

Department: Neurology

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We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

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