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There are many ways you can help children and their families get the care they need.
Boston Children’s Hospital has a long history of being at the forefront of advancements in spina bifida treatment, setting a precedent for spina bifida centers around the world. From prenatal care to minimally invasive surgeries to transition care for adults, our team has expertise in every stage of your child’s development.
Children with spina bifida face many challenges, and those challenges are different for each child. Our treatment plans are customized for your child’s specific needs and designed to support of the long terms goals of an active and fulfilling life.
Our approach to spina bifida care is distinguished by our:
Our doctors know that achieving urinary continence is important for normal growth, development and self-esteem in children with spina bifida. Our world-leading Urodynamics Program provides advanced technology and unique coordination among urology and neurology specialists to help children regain control of their bladder and bowel.
Nerve conduction studies (NCS) and electromyography (EMG) are specific tests that capture an accurate snapshot of how your child’s nerves and muscles are working. These assessments can influence important surgical decisions and improve results.
We are one of only a few clinics nationally to provide complete coordination among a team of spina bifida experts. In one place, at one time, families can consult with specialists working together to treat and support families facing the many challenges of spina bifida.
Our spina bifida team includes:
Meet our spina bifida experts.
Our patients also have access to many of the other specialized programs we offer at Boston Children’s Hospital and at partnering locations. These programs may also enhance your child’s personalized treatment plan.
For an appointment, more information or to obtain a second opinion for your child, please call us at 617-355-8532 or request an appointment online.
If you have a medical question about your child with spina bifida, please call our Nurse Line at 617-355-7704.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”