Spina Bifida Treatments

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Contact the Spina Bifida Center

  • 617-355-8532
  • International: +1-617-355-5209
  • Locations

Boston Children’s Hospital has a long history of being at the forefront of advancements in spina bifida treatment, setting a precedent for spina bifida centers around the world. From prenatal care to minimally invasive surgeries to transition care for adults, our team has expertise in every stage of your child’s development.

Spina Bifida Clinic 2 

Boston Children’s: Our Approach to Spina Bifida Treatment

Children with spina bifida face many challenges, and those challenges are different for each child. Our treatment plans are customized for your child’s specific needs and designed to support of the long terms goals of an active and fulfilling life.

Our approach to spina bifida care is distinguished by our:

  • Groundbreaking surgeries: Our center and its surgeons are known for pioneering treatments such as ETV/CPC—a surgical alternative to shunts that greatly improves quality of life. Learn more about spina bifida surgery at Boston Children’s.
  • Advanced testing for better surgical results: Our uniquely advanced spina bifida tests provide clear and accurate details about your child’s condition.
  • Collaboration among specialties: We are one of only a few clinics nationally to provide complete coordination among specialists in neurosurgery, urology, orthopedics, physical therapy, neuropsychology, social work and more. Meet our spina bifida team.
  • Prenatal care: Our focus on prenatal care for spina bifida means extraordinary care for expecting mothers and immediate surgical care for newborns in our world-class NICU.
  • Spina bifida treatment in young adults: Boston Children’s Hospital is the only spina bifida center in New England that provides transition care for adult spina bifida, through age 35.

Boston Children’s World Renowned Urodynamics Program

Our doctors know that achieving urinary continence is important for normal growth, development and self-esteem in children with spina bifida. Our world-leading Urodynamics Program provides advanced technology and unique coordination among urology and neurology specialists to help children regain control of their bladder and bowel.

Nerve conduction studies (NCS) and electromyography (EMG) are specific tests that capture an accurate snapshot of how your child’s nerves and muscles are working. These assessments can influence important surgical decisions and improve results.

Coordinated Care For Children with Spina Bifida and Their Families

We are one of only a few clinics nationally to provide complete coordination among a team of spina bifida experts. In one place, at one time, families can consult with specialists working together to treat and support families facing the many challenges of spina bifida.

Our spina bifida team includes:

  • Neurosurgeons: Performing revolutionary procedures that can alleviate the need for a shunt (a valve used to drain excess cerebrospinal fluid from the brain and carry it to other parts of the body)
  • Urologists: Proactively monitor and maintain your child’s urinary capabilities
  • Orthopedic surgeons: Treating issues surrounding orthotics and motor development
  • Complex care pediatricians: Caring for the whole child
  • Nurse practitioners: Triagin patients, coordinating care, and demonstrating extraordinary experience and compassion
  • Specialists: Including nephrology, endocrinology and gastroenterology

Meet our spina bifida experts.

Additional Programs and Services for Children with Spina Bifida

Our patients also have access to many of the other specialized programs we offer at Boston Children’s Hospital and at partnering locations. These programs may also enhance your child’s personalized treatment plan.

  • Colorectal Center: Treats children with urine and bowel incontinence, offering care from multiple specialists and personal treatment plans
  • Clinical Genetics Program: Provides diagnostic services and genetic counseling for patients and families with birth defects and other developmental problems
  • Gait Laboratory (at Spaulding Rehabilitation): Uses state-of-the-art diagnostic technologies to evaluate children with complex walking difficulties
  • Augmentative Communication Program: Provides comprehensive evaluation and treatment services for children with conditions affecting communication abilities

Make an Appointment

For an appointment, more information or to obtain a second opinion for your child, please call us at 617-355-8532 or request an appointment online.

Spina Bifida Nurse Line at Boston Children’s

If you have a medical question about your child with spina bifida, please call our Nurse Line at 617-355-7704.

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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