Spina Bifida Center | Patient Resources

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Contact the Spina Bifida and Spinal Cord Conditions Center

  • 617-355-8532
  • International: +1-617-355-5209
  • Locations

Please note that neither Boston Children’s Hospital nor the Spina Bifida Center at Boston Children’s unreservedly endorses all of the information found at the sites listed below. These links are provided as a resource.

External Resources for Parents and Families

•   Camp MITIOG – A Camp for Children with Spina Bifida
•   For Children and Adults with Spina Bifida and Hydrocephalus
•   International Federation for Spina Bifida and Hydrocephalus
•   Society for Research into Hydrocephalus and Spina Bifida
•   Spina Bifida Association
•   Spina Bifida Association of New England
•   Spina Bifida Connection Support Forum
•   Spina Bifida Moms and Dads Discussion Group
•   Spina Bifida Parents Discussion Group
•   Straight Talk About Bedwetting: Speaking to Siblings of Special Needs Kids
•   Welcoming Babies with Spina Bifida
•   Right Under My Nose: A Book for Children with Spina Bifida

Resources for Teens

•   Disabled Sports USA
•   Teens on the Move: An Exercise Video for Teens with Spina Bifida
•   Paralympic Sports

Resources for families living outside the U.S.

For patients and families outside the United States, Boston Children's International Health Services is a dedicated resource for patients and families from countries outside the United States. International Health Services:

•   Facilitates the medical review of patient records
•   Assists with scheduling appointments
•   Provides assistance with customs and immigration
•   Helps coordinate transportation
•   Assists with arranging hotel lodging and other housing accommodations

You may contact International Health Services by phone at 01-617-355-5209 or via e-mail at international.center@childrens.harvard.edu.
Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337