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There are many ways you can help children and their families get the care they need.
The Spina Bifida and Spinal Cord Conditions Center at Boston Children’s Hospital is world-renowned for its expert surgeons, pioneering spina bifida treatments, advanced spina bifida research and personalized care plans. Our approach is a collaborative team effort among specialists committed to making a difference for every child in our care. Families come to Boston Children’s from throughout the country for the peace of mind that their child is getting the best care for the best start in life.
A diagnosis of spina bifida is a life altering one. Your child will have very specific needs at each stage of his or her life. Our experts are with you every step of the way, helping you make informed decisions about advanced surgical treatments, ongoing therapies, daily challenges and the transition to adulthood.
Our center has a long and rich history of being at the forefront of surgical advancements and provides a uniquely comprehensive approach to care. We offer:
• Highest-ranked programs in the country: Boston Children’s Hospital is #1 in neurology and neurosurgery,
#1 in orthopedics and #1 in urology in the U.S., according to U.S. News & World Report. All of these specialties
play a role in our Spina Bifida Center.
• Pioneering treatments: Our center and its surgeons are world renowned for groundbreaking spina bifida
treatments such as ETV/CPC—a procedure that provides an alternative to shunts and greatly improves quality of
• Extensive, coordinated team care: We are one of only a few clinics nationally to provide extensive
coordination among specialties. Our spina bifida team is made up of experts in neurosurgery, urology,
orthopedics, physical therapy, neuropsychology, social work and many other specialties—including a dedicated
nurse practitioner who knows every patient and family by name. We work together toward the common goal of
health and wellness for every child. Meet our spina bifida experts.
• Advanced imaging and testing: Pediatric specialists provide prenatal and postnatal spina bifida testing that
offers important clarity about your child’s condition, helping you make informed decisions during an otherwise
• Compassionate prenatal care: Our Advanced Fetal Care Center (AFCC) provides prenatal consultation from
a team of specialists focused on spina bifida as well as coordination with obstetrics and maternal-fetal medicine
to plan your delivery and immediate post-natal care.
• Age-appropriate, personalized services: Boston Children’s Hospital is the only spina bifida center in
New England that treats adults. We provide transition care for adult spina bifida, up to age 35, helping patients
with spina bifida move into adulthood and toward independence.
• Comprehensive urodynamics program: Our urodynamics center is the largest, most advanced of its kind.
Nowhere else in the world do patients receive such comprehensive and coordinated evaluations by a neurologist
and urologist team to accurately measure your child’s bladder function and its connection to the central nervous
system. These assessments can help determine when and if a surgical procedure is necessary.
• On-site orthotics: Patients and families living with spina bifida don't have to travel far in search of customized
orthotics. The National Orthotics & Prosthetics Company (NOPCO) Brace Shop, an independent store located at the
hospital campus, makes everything from special spinal supports to prosthetic limbs and cranial helmets.
• Family-centered care: Above all, we are dedicated to providing emotional and educational support for your
entire family by monitoring your child’s progress against developmental milestones and providing support to your
Learn more about our promising spina bifida research.
For an appointment, more information or to obtain a second opinion for your child, please call us at 617-355-8532 or request an appointment online.
If you have a medical question about your child with spina bifida, please call our Nurse Line at 617-355-7704.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”