Spina Bifida and Spinal Cord Conditions Center

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Contact the Spina Bifida and Spinal Cord Conditions Center

  • 617-355-8532
  • International: +1-617-355-5209
  • Locations

At Boston Children’s Hospital, we recognize the diagnosis of spina bifida requires life-long management. No matter the complexity of your child’s spina bifida, we offer the most comprehensive care at each stage of your child’s life, from infancy through early adulthood. We typically see patients within the first month of life for a visit with all of our specialists.

Spina bifida is a whole-body condition that requires a whole-person approach. Managing the multiple specialists needed to care for your child can be overwhelming. That’s why our team of experts from over a dozen specialties works together to develop one personalized and coordinated care plan for you and your family. At Boston Children’s, every visit — from clinic visits to testing to surgery — is coordinated by our nurse practitioners, allowing you to focus on what’s most important: your child. Our team is here to be your partner, helping you make decisions about advanced surgical treatments, ongoing therapies, daily challenges and the transition to adulthood. We’ll also partner with your child’s primary care provider to collaborate on your child’s care every step of the way.

Comprehensive care for spina bifida

Spina bifida isn’t just a disorder that affects the spinal cord. Because a spina bifida diagnosis can result in a range of physical and neurological challenges, the Spina Bifida and Spinal Cord Conditions Center offers total coordinated care for all related conditions. This includes meningocele, lipomyelomeningocele, myelomeningocele, chiari malformation, tethered cord, scoliosis, clubfoot and other bone deformities.

You’ll also have access to many of the other specialized programs we offer at Boston Children’s and at partnering locations. These include an onsite orthotics shop and a state-of-the-art gait laboratory to assess your child’s ability to walk. Our renowned Urodynamics Program uses advanced technology to provide a comprehensive evaluation of bladder function with a detailed assessment of the lower spinal cord nerves.

From advanced imaging tests that shed light on your child’s individual condition, to pioneering surgical treatments, to educational resources and emotional support, our staff is here to help ensure that your child has the best chance for a healthy, fulfilling life.

In addition, our Spina Bifida Center is the only center in New England and one of only a few in the country that treats children with spina bifida into early adulthood. We have partnered with team members at Brigham and Women’s Hospital who can continue care of our older patients when the time comes.

Spina Bifida Clinic 4 

A dedicated research team

Our team’s dedication to research and innovation is another huge asset to our program. Every year, we receive funding from the National Institutes of Health and generous philanthropic donors to pursue a wide range of important research to help improve the lives of those with spina bifida.

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

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