Roberts Program

Robert’s Program is a clinical service offered to families in Massachusetts who have lost a child under the age of three years suddenly and unexpectedly. We help understand the cause of the child’s death while supporting families through a very difficult time.

Based at Boston Children's Hospital, our multidisciplinary team uses the most current medical knowledge about sudden and unexpected death and works to find answers. We contribute to the care of Sudden Unexpected Death in Pediatrics (SUDP) - which encompasses Sudden Infant Death Syndrome (SIDS) and Sudden Unexpected Death in Childhood (SUDC).

**We have a research registry for families living outside of Massachusetts**

Our far-reaching program involves clinicians and scientists from the fields of:

  • general pediatrics
  • neurology
  • genetics
  • cardiology
  • metabolism
  • endocrinology
  • neuropathology
  • pediatric and forensic pathology
  • bereavement support We work collaboratively with
  • the Massachusetts Office of the Chief Medical Examiner (OCME)
  • the Massachusetts Center for Unexpected Infant and Child Death (SIDS).
  • Local Pediatricians
Mission Robert’s Program offers clinical care in the aftermath of sudden unexplained deaths while contributing to research that seeks to prevent such deaths Clinical mission:
  • To provide comprehensive clinical care to families that have suffered the sudden and unexpected death of a child under the age of three due to natural causes, including:
  • Evaluating SUDP as an undiagnosed disease with an independent, cutting edge approach
  • Contributing expertise and resources to the medical examiner’s investigation of your child
  • Providing risk assessment and genetic counseling for the family, including other children
  • Bereavement support throughout the process
Research Mission: Robert’s Program performs state-of-the-art research into sudden unexpected death in pediatrics to understand fatal underlying vulnerabilities in children and prevent them including research in:
  • SUID - Sudden Unexpected Infant Death
  • SIDS - Sudden Infant Death Syndrome
  • SUDC - Sudden Unexplained Death in Childhood
  • SUDEP - Sudden Unexplained Death in Epilepsy
  • “Unexplained” SCDY - Sudden Cardiac Death in the Young

For more information please visit Frequently asked Questions.

Contact Us

Address:
Boston Children’s Hospital 
300 Longwood Avenue 
Boston, MA 02115 
Phone: 617-919-4513 
Email: robertsprogram@childrens.harvard.edu