Rett Syndrome Program | Meet Our Team

Our Rett Syndrome Program brings together a team of professionals from all over Boston Children’s Hospital who have expertise in working with patients with Rett syndrome. We are dedicated to providing the best possible care for your child and to helping her reach her full potential.

Clinic and Research Leadership

David Lieberman, MD, PhD

David Lieberman, MD, PhD

Assistant, Department of Neurology Instructor of Neurology, Harvard Medical School
Mustafa Sahin, MD, PhD

Mustafa Sahin, MD, PhD

Director, Translational Neuroscience Center; Director, Translational Research Program; Rosamund Stone Zander Chair Professor of Neurology, Harvard Medical School
David Urion MD

David K. Urion, MD, FAAN

Associate, Department of Neurology; Charles F. Barlow Chair in Neurology; Director, Education and Residency Training Programs in Clinical Neurology and Clinical Neurodevelopmental Disabilities; Director, Behavioral Neurology Clinics and Programs; Co-Chair, Ethics Advisory Committee Associate Professor of Neurology, Harvard Medical School

Clinic Staff

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Rochelle Witt, MD, PhD

Fellow, Rett Syndrome Program
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Ellen Sexton, RN

Registered Nurse, Rett Syndrome Program
Lindsay Swanson

Lindsay C. Swanson, MS, CGC

Licensed Genetic Counselor & Clinical Research Manager, Department of Neurology

Affiliated Physicians

Richard Antonelli, MD, MS

Richard Antonelli, MD, MS

Medical Director, Integrated Care Assistant Professor of Pediatrics, Harvard Medical School
Mark E.  Alexander

Mark Alexander, MD

Co-Director, Exercise Physiology Associate Professor of Pediatrics, Harvard Medical School
Elizabeth Barkoudah, MD

Elizabeth Barkoudah, MD

Assistant, Department of Neurology; Co-Director, Cerebral Palsy and Spasticity Center; Assistant Program Director, Neurodevelopmental Disabilities Residency Instructor of Neurology, Harvard Medical School
Lois O. Condie, PhD

Lois O. Condie, PhD

Neuropsychologist, Department of Neurology Assistant Professor of Psychology in Psychiatry, Harvard Medical School
David J. Fogelman, MD

David Fogelman, MD

Pediatric Physical Medicine & Rehabilitation Specialist, Orthopedic Center Instructor in Physical Medicine and Rehabilitation, Harvard Medical School
Lauren Glader

Laurie Glader, MD

Associate in Medicine, Division of General Pediatrics; Director, Complex Care Service Outpatient Program; Co-Director, Cerebral Palsy and Spasticity Center Assistant Professor of Pediatrics, Harvard Medical School
Chellamani Harini, MD

Chellamani Harini, MD

Assistant, Department of Neurology Instructor of Neurology, Harvard Medical School
Ingrid Holm, MD, MPH

Ingrid Holm, MD, MPH

Attending Physician, Division of Endocrinology; Attending Physician, Division of Genetics and Genomics Associate Professor of Pediatrics, Harvard Medical School
Bridget Hron, MD, MMSc

Bridget Hron, MD, MMSc

Attending Physician, Division of Gastroenterology, Hepatology and Nutrition Instructor in Pediatrics, Harvard Medical School
Umakanth Katwa, MD

Umakanth Katwa, MD

Attending Physician, Division of Medicine; Director, Sleep Laboratories; Director, Aero-digestive Center; Director; Primary Ciliary Dyskinesia Program Instructor of Pediatrics, Harvard Medical School
Kiran Maski, MD

Kiran Maski, MD, MPH

Director, Sleep Clinic, Department of Neurology Assistant Professor of Neurology, Harvard Medical School
Christelle Moufawad El Achkar, MD

Christelle Moufawad El Achkar, MD

Assistant, Department of Neurology Instructor of Neurology, Harvard Medical School
Donna Nimec

Donna Nimec, MD

Physiatrist in Physical and Rehabilitation Medicine, Orthopedic Center Assistant Professor of Physical Medicine and Rehabilitation, Harvard Medical School
Andrea Pettinato, MD

Andrea Pettinato, MD

Attending Physician, Division of Adolescent Medicine Instructor in Pediatrics, Harvard Medical School
Jonathan Picker

Jonathan Picker, MD, PhD

Assistant in Medicine, Division of Genetics and Genomics; Director, Fragile X Program Instructor, Harvard Medical School
Benjamin Shore, BSc, MD, FRCSC

Benjamin J. Shore, MD, MPH, FRCSC

Orthopedic Surgeon, Orthopedic Center; Co-Director, Cerebral Palsy and Spasticity Center Assistant Professor of Orthopedic Surgery, Harvard Medical School

Research Staff

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Grace Bazin, BSc

Research Nurse, Rett Syndrome Program
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Michelle DeLeo, BA

Research Coordinator, Rett Syndrome Program
 Suzanne Rose, CPN, MSN, BSN

Suzanne Rose, CPN, MSN, BSN

Pediatric Nurse Practitioner, Epilepsy Center

Therapists and Resource Coordinators

Alycia Berg

Alycia Berg, MS, CCC-SLP

Speech-Language Pathologist, Department of Otolaryngology and Communicatin Enhancement
Christine Monterio, MSW

Christine Monterio, MSW

Clinical Social Worker, Department of Neurology

Education Specialists

Amy Raeder, MEd

Amy Raeder, MEd

Patient & Family Educator, Bullying and Cyberbullying Prevention and Advocacy Collaborative (BACPAC)
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Catherine Petty

School Support Specialist, Rett Syndrome Program