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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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What to bring when preparing for your child's visit:
What happens at the visit?
Depending on the location of your visit, you and your child may participate in our heart healthy new patient class. If you do not partake in the class we will review this information with you individually at your visit. You will see two providers individually, the physician or nurse practitioner and the dietitian. The physician or nurse practitioner provides a full physical evaluation, reviews all preordered laboratories and offers medical analysis. The dietitian provides a full nutrition assessment, reviews your food record and typical diet and recommends heart healthy treatment goals. Further testing may be recommended at the time of your visit.
What to expect
After a thorough health evaluation, the clinic medical staff will develop a comprehensive plan for your child based on the causes underlying his or her abnormal cholesterol or blood pressure. For some, the plan includes a weight-loss component that incorporates heart healthy eating and exercise. In many children, when weight comes down, so does bad cholesterol and blood pressure. In addition to diet and exercise planning, the clinic offers long-term follow-up and routine monitoring of cholesterol levels, triglycerides, blood pressure and other important health indicators.
Successful treatment usually involves a lifetime commitment to healthy eating habits and exercise. In some cases, cholesterol-lowering medications or other medications for secondary illnesses may be incorporated. In children without a secondary illness, treatment with medication is typically secondary to making important lifestyle changes that will reduce your child’s risk for atherosclerosis while increasing stamina and helping him or her feel healthier and leaner.
The best approach is to make family-wide changes in eating and exercise. This makes change easier for your child; and often, multiple members of the family can benefit from making healthy changes, too. Utilizing different eating and activity plans for each family member can leave some children feeling singled out or isolated, making already difficult lifestyle changes even more so.
Changing the lifestyle of your family can be challenging. Rest assured that although there are no magic bullets, the clinicians, nurses and nutritionists at Children’s Hospital Boston have lots of experience helping thousands of parents facing the same challenges, and will offer strategies that have helped many other children and teens stick with the program.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”