In 1997, Dana-Farber/Boston Children's Cancer and Blood Disorders Center created the Pediatric Advanced Care Team (PACT) to meet the unique needs of families struggling with a child’s advanced illness. We offer family-centered, physical and psychosocial care for children with advanced illnesses that impose limitations on their lives.
Our PACT caregivers support patients, families and their primary healthcare teams in decision making and advanced care planning, easing pain and symptoms, coordinating home care and address any specific issues your family may be facing.
Our palliative care specialists keep the lines of communication open between families and health care providers, so you have the information you need to make decisions. We are here to help.
Pediatric palliative care refers to treatments intended to optimize the quality of life and promote healing and comfort for children with life-threatening illness. Some of the support we provide includes:
optimizing pain and symptom management
advocating family and health care provider communication
coordinating inpatient, outpatient and home care
Our Pediatric Advanced Care Team consults with you, your family and your primary care team to bring together the information and guidance needed to make the best health care decisions for your child.
We bring together experts from a wide variety of disciplines in order to care for your child. Our care team includes:
physicians with advanced training in palliative care
nurse practitioner with extensive experience providing pediatric palliative care
other pediatric care specialists as needed
social worker with expertise in psychosocial support and community resources
dedicated pastoral services
At Dana-Farber/Boston Children's Cancer and Blood Disorders Center, we consider you and your child integral parts of the care team and not simply recipients of care. You and your team will work together to customize a plan of care for your child.
Who we treat
Pediatric palliative care is most often delivered to children who need help managing condition-related symptoms that impose limitations on their life. This includes children who are facing any life-threatening medical condition. Some of the patients the Pediatric Advanced Care Team has supported have had:
- cystic fibrosis
- seizure disorders
- heart disease
- disorders of prematurity
- genetic or metabolic conditions
This is not an exhaustive list. If your child's condition is not listed above, please contact us to learn how we may be able to help your child.