Pediatric Myelodysplastic Syndrome Specialty Care Overview

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Contact the Myelodysplastic Syndrome Specialty Program

The Myelodysplastic Syndrome Specialty Program at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center provides specialized care for children with myelodysplastic syndrome (MDS) and myeloproliferative disease, as well as MDS subtypes such as refractory cytopenia, refractory anemia with excess blasts (RAEB) and RAEB in transformation.  We are the only large pediatric center in the country designated as a center of excellence by the MDS Foundation.

Dana-Farber/Boston Children’s is an integrated pediatric hematology and oncology partnership between Dana-Farber Cancer Institute and Boston Children’s Hospital. We offer, in one specialized program, the full spectrum of services that are needed for diagnosis, treatment and ongoing care of even the rarest and hard-to-treat cancers and blood disorders.

Patients in the Myelodysplastic Syndrome Specialty Program are treated by a team that includes a pediatric hematologist with special expertise in MDS and pathologists with specialized training in pediatric hematopathology. We provide a range of treatment options, including access to one of the nation’s oldest and largest pediatric stem cell transplant programs.

Through our research program and clinical trials, our clinicians and scientists are studying why MDS occurs and developing new treatment options for these conditions. With funding from the National Institutes of Health, we recently established the first nationwide patient registry and tissue repository for pediatric MDS and bone marrow failure disorders.

Learn more about our Myelodysplastic Syndrome Specialty Program on the Dana-Farber/Boston Children’s website.

 

Educational Program for Kids with Aplastic Anemia, MDS, or PNH

Pediatric hematologist/oncologist Inga Hofmann, MD, PhD, will host an interactive workshop designed just for kids and teens affected by bone marrow failure at the Aplastic Anemia & MDS International Foundation conference, “Living with Aplastic Anemia, MDS, or PNH,” Sept. 7, 2013, Boston Marriott Peabody. Educational program, art project, face painting, ice cream, and more! 

Learn more


 

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