Moyamoya Disease Program | Support Moyamoya Awareness

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Contact the Moyamoya Disease Program

Support Moyamoya awareness!   

Childhood stroke is a rare but tragic occurrence. If you live in Massachusetts, help prevent it by supporting Senate Docket 1753 (SD1753), designating May 6 as Moyamoya Awareness Day.

Although rare, Moyamoya is a relatively common cause of stroke in children—yet it is rarely detected until a stroke actually occurs. Unfortunately, once Moyamoya begins, it can progress quickly and become harder to treat.

This bill could save lives by bringing moyamoya to the attention of families and doctors and encouraging early diagnosis—particularly in children with Down syndrome and sickle cell disease, who are at greater risk.

Encourage your state senator to support this bill, and bring Massachusetts into line with the annual World Moyamoya Day. Just follow these three easy steps:

1) Go to to identify your state senator. Click on the name of your state senator to see his or her contact information.

2) Call your state senator! Say you are a constituent and that you would like him or her to cosponsor Senate Docket 1753: An Act Designating Moyamoya Awareness Day

3) Follow up with an email. We suggest you cc: Kate Audette, director of State Government Relations at Boston Children’s Hospital, at on the email. That way, if the senator’s staff have questions about the bill, Kate can follow up with them.

You can also help raise moyamoya awareness by sharing with your social networks. Use the hashtag #May6Moya.

Awareness is key to saving lives. Thanks for your support!

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
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