Information about your visit
Each child needs different tests during the pre-transplant process, but no two appointments are exactly alike. They will differ depending on your child’s health, where he or she is in the transplant process and what information the team needs about his or her health.
Important tips to keep in mind:
- Always arrive on time (or better yet, early) for any appointment. Remember, the Longwood area draws a lot of people and a lot of traffic.
- Your physicians and nurses, along with the scheduling staff, will often ask you to bring documents with you to appointments like lab results, medical records or x-rays generated outside of Boston Children’s. Make sure you have these materials before you leave for your appointment.
- For your first appointment, bring all of your child’s previous medical records from other institutions, including x-rays, ultrasounds, CT scans and blood work.
Bring a copy of your child’s updated immunization record.
- Often you can fax this information ahead of time. Speak with the program coordinator or scheduler.
- Always keep your insurance information with you.
Our transplant candidates and recipients benefit from the many specialties and services Boston Children's has to offer, such as:
Child Life Services
Child Life Specialists enhance our transplant patients’ emotional, social and cognitive growth during their hospital stay, giving special consideration to each child’s family, culture and stage of development. Our professionals are trained to work in the areas of child development, special education or recreation therapy.
Boston Children’s has an Immunocompromised Host Service (within the Division of Infectious Diseases) that focuses on the infectious disease issues affecting transplant recipients. The infectious disease nurse practitioner or physician meets with each transplant candidate.
The Clinical Nutrition Service at Boston Children’s provides comprehensive nutrition consultation for patients of all ages. Using innovative diagnostic and evaluation techniques, our staff develops appropriate nutrition plans for many of our patients.
Perioperative Transplant Team
This group of professionals is dedicated exclusively to the care of patients having a transplant. Transplant surgeons, operating room nursing staff, anesthesiologists and cardiopulmonary perfusionists work together to provide individualized care to each patient. We are with your child from the time you arrive in the pre-operative waiting area until your child is safely in recovery.
Our pharmacists and technicians are well trained in the unique needs of young transplant patients and work closely with surgeons, physicians and the rest of the multidisciplinary team to develop a medication plan specific to each child.
Because medication is such an important part of life post-transplant, a transplant pharmacist personally meets with each transplant candidate.
Psychiatry and Psychology
Due to the drastic life changes that are part of the transplant process, many patients who have received transplants benefit from the care of a mental health professional. Long-term continuity of mental health care is critical.
Psychiatrists and psychologists at Boston Children’s work with our families right at the outset of the process and as the patient grows toward adulthood, these professionals can assist in the transition of your child’s mental health care.
Each transplant program has a social worker that provides a wide range of services to support the care of patients and families before, during and after the transplant.
Facts and figures
AS OF JUNE 2012
| Intestine/ MV