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The Interstitial Lung Disease Program at Boston Children's Hospital consists of an expert team of physicians, surgeons, nurses, nutritionists and social workers who assist in the care of children with interstitial lung disease.
Our multidisciplinary team provides a full diagnosis and evaluation of each child with interstitial lung disease. We work with families to plan individualized therapy depending on the specific condition. Our goal is to offer the best care of the child’s respiratory health, growth and nutrition. Additionally we provide education about pediatric interstitial lung disease and family support. If indicated, we also assist in arranging home health care support and supplies, transportation services, and visiting nursing services.
In addition, the Division of Respiratory Diseases provides expert review and opinion, as well as other services and support, for lung transplantation.
Our Interstitial Lung Disease Group is a part of the Children's Interstitial Lung Disease Research Network (ChILDRN) associated with the Children's Interstital Lung Disease (ChILD) Foundation.
Please visit the ChILD Foundation website for more information.
Acute interstitial pneumonia/pneumonitis
Alveolar capillary dysplasia
Alveolar hemorrhage syndromes (pulmonary capillaritis , acute idiopathic pulmonary hemorrhage of infancy, and idiopathic pulmonary hemosiderosis)
Aspiration associated lung disease
Autoimmune or rheumatologic related lung disease
Bone marrow transplant associated lung disease/Graft versus host lung disease
Cryptogenic organizing pneumonia formerly known as bronchiolitis obliterans organizing pneumonia (BOOP)
Desquamative interstitial pneumonia
DNA repair disorders
Drug induced lung disease
Immune mediated lung disease
Immunocompromised host associated lung disease
Lymphocytic interstitial pneumonia
Lysosomal storage disorders
Neuroendocrine Hyperplasia of Infancy (NEHI)
Nonspecific interstitial pneumonia
Pulmonary Alveolar Proteinosis
Pulmonary Interstitial Glycogenosis (PIG)
Pulmonary alveolar microlithiasis
Pulmonary vascular disorders
Radiation induced lung disease
Surfactant gene mutation associated lung disease (SP-B, SP-C, ABCA3, TTF-1, GMCSF receptor)
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”