Inherited Cardiac Arrhythmia Program

The Inherited Cardiac Arrhythmia Program (ICAP) at Boston Children’s Hospital provides state-of-the-art care to patients and their families with an inherited arrhythmia syndrome, cardiomyopathies, and a family history of sudden unexpected death or sudden cardiac arrest. Our care strategy is tailored to the specific clinical and genetic needs of the individual, which may vary even within families.

Our program is part of the larger electrophysiology service within the department of cardiology at Boston Children’s Hospital serving children and adults with heart rhythm problems.

 

Dominic Abrams, MD, of the Cardi­ology Department at Boston Children's Hospital, is developing a new approach to treating inherited diseases.

Our expertise in inherited cardiac arrhythmia

Our team is committed to providing comprehensive care to patients and families with inherited heart conditions.

Some of the more common specific inherited heart rhythm conditions we care for include:

We are always seeking to understand the medical and psychological impact of inherited heart conditions through our clinical and basic science research programs. We strive to find new treatment options to help improve both medical outcomes and quality of life for our patients. 

Living with Inherited Cardiac Arrhythmia

Meet one family who continues to lead an active lifestyle after a diagnosis of long QT syndrome


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Why choose the Inherited Cardiac Arrhythmia Program (ICAP)?

Our team uses a collaborative approach to evaluating individuals and families. We draw on our expertise in adult and pediatric cardiology and medical genetics to identify, screen and manage patients and families affected by inherited heart conditions. What differentiates our program is that we have physicians, a nurse practitioner, a genetic counselor and a child psychologist present at every clinic visit. We also collaborate closely with the Cardiovascular Genetics Program at Brigham & Women’s Hospital. This ensures all family members may be seen in one visit under the care of a single program, and provides clear management strategies for all family members.

Our approach includes a detailed education plan for families. Our team makes sure every individual leaves our clinic with a clear understanding of the clinical, genetic and molecular aspects of their condition and why specific treatment strategies have been chosen for them. We believe a detailed knowledge of inherited heart conditions is the cornerstone to successful management and builds a collaborative relationship between our clinical team and our patients.

We work closely with our patients to make joint decisions about their care, considering the needs and wishes of each individual. This often involves a detailed discussion about involvement in recreational and competitive athletics. Our approach is to allow our patients to pursue the activities they want in a safe, structured environment wherever possible.

Clinics are held weekly at Boston Children’s Hospital main campus at 300 Longwood Avenue. We recognize that families are busy and aim to coordinate family appointments with both Boston Children’s and Brigham and Women’s on the same day. We also have clinics in Waltham which may be easier for many patients and families traveling from further distance. 

Ultimately, the family itself is the most powerful tool we have to understand any specific inherited heart condition, and therefore we are committed to providing a comprehensive evaluation of all family members that allow a deep understanding of the clinical and genetic manifestations, create optimal treatment strategies and allow you to live your life as you wish.